D is for Diabetes: Blogging from A to Z Challenge

D

Two weeks before my 40th birthday I was diagnosed with Type 1 diabetes. For the last six years I have been living with a chronic illness that, for the most part, goes undetected by the people I encounter in my day to day life. Only when I suddenly have a low blood sugar or have to calibrate my insulin pump are people fleetingly aware of what I live with every moment of every day.

T1PlayDate

Diabetes is one of the more stealth of the chronic diseases. Every seven seconds a person dies due to complications from diabetes. One out of every 12 people has diabetes and one of every two people with diabetes don’t even know they have it.

When I was diagnosed, I had very little knowledge about diabetes. As with any diagnosis, I am continually amazed at the things that people say:

How can you have diabetes? Nobody in your family has it! No. Nobody in my family has it, thank goodness. I guess I got lucky. Surprisingly, even doctors have said this to me.

BadKind

Do you have the good kind of diabetes or the bad kind of diabetes? Ummm… Any diabetes diagnosis is scary, whether it is Type 1 or Type 2. The difference is that Type 1 is insulin dependent and Type 2 is managed with oral medication. Both types of diabetes are better managed with close attention to diet and exercise. So are many other diseases.

Wow! I can’t believe you have diabetes, you aren’t fat! I’m not thin, I’m not fat. I’m diabetic. In fact, before I was diagnosed with diabetes, I was quite happy with the weight I lost. Little did I know it was because I was living with blood glucose in the 500+ range for quite some time.

SugarKid

You must’ve had a sweet tooth as a kid. Actually, no, I didn’t.

Well, at least it is a controllable disease. Yes, modern medicine has made diabetes a much more manageable disease. However, it cannot be cured. I will never go into remission. Also, it is a crazy expensive disease. Thankfully I have good insurance. I don’t know what I would do if I didn’t. If I didn’t have insurance, I wouldn’t be able to afford my insulin pump supplies, which average $700/month. If I didn’t have insurance, I wouldn’t be able to afford insulin and test strips, which average $760/month. That is $1,460 a month for the rest of my life. Just to stay alive.

I could never do finger sticks and inject needles into myself! Yeah. I never thought I would have to do that either. It is amazing what you’ll do so that you don’t feel sick or end up in the hospital. Or worse.

DiabetesCannotEat

Should you be eating/drinking that? I can eat and drink anything you can. I just have to take insulin to cover it.

I read on the Internet that if you do X then the diabetes will go away. The number of cures and ways to regulate sugar levels is astounding. I am amazed that medical practitioners that devote their lives to helping people live with diabetes haven’t heard about how eating a pound of beans a day, adding cinnamon to everything or taking Vitamin B every day will cure diabetes!

These are just some of the things that I’ve heard since becoming a diabetic. As with any disease, questions or statements that seem irritating or uninformed are best answered with proper information and, even better, with a little humor.

I Am, Always, A Work In Progress

calvin-hobbes-new-years-resolutionsNormally, when the New Year comes, I don’t succumb to the trend of resolving to do things better, faster and/or more efficiently. Generally speaking, I don’t make resolutions because I believe that making them is a way of just setting yourself up for failure. I mean, who am I kidding? I won’t lose 30 pounds, I won’t stop having diabetes, I won’t stop living paycheck to paycheck and I won’t write the next award-winning play/novel. Does that make me a realist or does it make me a pessimist bound to fulfill her own prophecy? Hard to tell.

So began last year’s post about my New Year’s resolutions followed by a list of somewhat attainable goals. Looking back on the year, I can see where I succeeded and the many places I faltered. So, let’s take a look at last year’s resolutions, shall we?

  1. Be accountable for my actions and the impact those actions have on my life and on the lives of others. I think I have learned to be more accountable for my actions. When I screw up, I more readily admit that I screwed up. I’m still not perfect and, to be honest, this is sort of an ongoing resolution that will never be attained 100%.
  2. Be more honest with myself and with the people in my life. Especially myself. I have learned to trust people a little bit more and have a few friends that I have grown closer to this year. Honesty is hard and I am still not there. But I am trying.
  3. Be more relentless about saying “I love you” to the people that matter. I am not what you’d call an affectionate person. I’m not a hugger, a kisser or a PDA person. I still find myself making a concerted effort to say “I love you,” which means that I’m still working on this, too.
  4. Clean the basement and attic and utilize the space for something that is more effective than being a hiding place for our junk. Well, in 2014 we filled two 10-yeard dumpsters with junk. The attic was almost there and then one of the twins made it her bedroom. She’s a good sport and lives among boxes of Christmas decorations and toddler clothes. I suspect this project will be done in short order as will the basement, which is more than halfway there. If you’ve seen either our attic or our basement, you would know what at truly daunting task it is.
  5. Complain less. Comparatively speaking, I’ve got it pretty good. I still complain. Or maybe, more appropriately, I pass a lot of judgment. My kids accuse me often of drinking too much “judgy juice.” Fortunately, I have a very small group of people to whom I voice my complaints and judgment.
  6. Do more jigsaw puzzles. I did a lot of jigsaw puzzles during our two week vacation in Maine. Once I have a space where we can keep a puzzle going (or the puzzle board that has been on my wish list for two years now), I think I will do more puzzles. I love working a puzzle while the TV plays in the background.
  7. Eat more fruits, vegetables and seafood. Eat less fatty meats, cheese and carbs. Well this has been a roller coaster of a year for me in terms of my diet. I made a lot of headway and lost about 20 pounds but then managed to do a 180 and reclaim all of that lost weight and then some. I am at the heaviest I’ve been in my whole life, with the exception of when I was pregnant with twins, which tilted the scale over the 200 pound mark. While weight loss and better living is a boring resolution, it clearly needs to be a priority in 2015.
  8. Eliminate jealousy from my life and realize that another person’s success does not mean that I have failed. I know I should not judge my own self-worth when I see other people succeed. I think that social media does not help. People tend to bring forth their best or their worst selves on social medial. While I can just roll my eyes at the complaining, I can’t help but envy the person that got the promotion, has the perfect family, traveled to exotic places far and wide, got their show published/produced, etc. There are two things I can think of to combat this weakness: do more that will help me achieve my personal goals and stay away from social media. Hard to tell which one is the more attainable goal.
  9. Invite my friends into my home more often, for no special reason, and not worry about how clean the house is before I do it. I’ve been better about not caring about the mess so much. Now I just need to de-clutter my calendar so that we can host more gatherings.
  10. Knock the socks off of the people I work with. Impress someone at Gartner and get a long overdue promotion. Well, as we head into the new fiscal year, it is hard to tell whether or not I will actually be promoted. I do know that I have worked harder than ever this year and I know that it has gotten noticed. While my paycheck and title may not reflect that, I am proud of the work that I’ve done this year.
  11. Learn to say “no” more. I have had moments when I’ve said “no” but when I look at my schedule, I see that I still haven’t mastered the “just because you can do it, doesn’t mean you should” philosophy. I have a lot of talents and I want to share them but sometimes that one extra thing is what tips me into feeling overwhelmed and anxious.
  12. Learn to sew – even if it’s just basic things like place mats, pillows or the hem on a pair of pants. While I found my sewing machine in 2014, I did not take it out of its box. I didn’t even pick up a needle and thread in 2014. So I’m going to keep this one on the list.
  13. Let go of the need to do more and be more and realize that, for today, I’ve done the best I can, and that’s enough. I am a person that continually strives for perfection, so letting go is not in my DNA. We’ll add this to the “still working on it” column.
  14. Limit alcohol intake to weekends and special occasions. <Insert sounds of maniacal laughter here.>
  15. Lower my A1C. While I have lowered my A1C incrementally from appointment to appointment in 2014, it still needs a vast improvement. This really goes hand in hand with the managing of my diet.
  16. Master my “fancy camera” and learn how to take really good photographs. Well, Santa brought me some new lighting equipment, a new camera bag and some fun circular flashes for my lens, so I am determined now more than ever to take better pictures and take them more often.
  17. Read more books. When I think back to the number of books that I read in 2013, this was the year of getting back to reading. I will admit that I sometimes combine reading with the audio version of the book but all-in-all I have spent less time watching stories and more time reading and listening to them. In 2014, I completed: Gone Girl, Dark Places, Sharp Objects, The Giver, Me Before You, I’ll Give You The Sun, Eleanor & Park, Papa Hemingway and half of Still Alice. Not bad, considering I read nothing except plays in 2013.
  18. Resist the temptation for the following behaviors on Facebook: vaguebooking, passive aggression, attention seeking statuses or self deprecation. Better to say nothing at all. I have found myself thinking a lot more before I share something on social media, be it a status or a comment. There were even times when I would vocalize my thoughts to my husband and tell him that I am walking away from the computer. Still not perfected but getting better.
  19. Save $20 a week and use the money to fund one of the following in 2015: a writer’s retreat to Oregon for myself or a short cruise with Billy. Yeah, saving money was NOT something I did in 2014. Period. The end.
  20. See more movies at the movie theatre with a big bucket of popcorn in my lap and someone I care about by my side. I have seen a few movies this year but in the day and age of Netflix and streaming, the cost is so formidable. I did see Into The Woods, which was beautiful from a cinematography standpoint, even if I have no soul and don’t love the source material.
  21. Send more handwritten correspondence. This is something that I think is important and, in the age of technology, it is truly a lost art. I did not do a lot of handwritten correspondence in 2014, if any. I hope to in the forthcoming year.
  22. Spend no more than a half an hour a day on social media. Oh, the road to hell is paved with good intentions, isn’t it?
  23. Take more chances. Take those chances with the understanding that the answer might be “no” and that being told “no” is okay. I took a couple chances this year and most often was told “no” or “we’ll see.” I’m finding as I grow older that it doesn’t sting as much as it used to. I think I shall take more chances in 2015.
  24. Volunteer somewhere I am truly needed that is a place that will remind me of how blessed I am. I started volunteering with my daughter at Tails of Courage in Danbury this year. It has been a great experience thus far. She loves dogs and Tails of Courage rescues animals and facilitates their adoption. This is a perfect way to spend more time with my daughter and do something that makes a difference in our community and in the lives of innocent animals.
  25. Write every day. My writing, which is an avocation, has taken a curious turn this year. I started a new blog after my dear friend Jude passed away. I have been sporadic at best when it comes to posting to it. I also started reviewing local productions and writing columns for OnStage, a blog dedicated to promoting local theatre. In 2015, I hope to really put the pedal to the metal and complete a few projects.

Most of what I resolved to in 2014 will stay on the list for 2015. Since I am ever-changing and always looking to broaden my horizons, here are five more that I’ve added to the list for this year:

  1. Learn to play an instrument.
  2. Write a novel.
  3. Learn to shuck my own oysters.
  4. Revisit and fine tune my abilities as a performer. Nobody in the area has a real sense of what I can do and my audition skills have gotten so rusty that I’ve not yet been afforded the chance to show them.
  5. Start a vegetable and herb garden in the spring.

Every year is filled with challenges, some expected and most unforeseen. On the eve before my birthday, which also happens to be the start of a new calendar year, I am happy to have made it through the outgoing year without major incident and look forward to a new year with family, friends and experiences that make me the complicated, slightly imperfect but well-worth-knowing person that I am.

Happy 2015!

My Broken Foot Will Never Heal

WDD
Today is World Diabetes Day. Here are some sobering facts about diabetes:

  • Almost 39 million people in North America have diabetes. If we do not act now, this figure will reach 50 million by 2035.
  • 1 in 9 adults have diabetes in North America – the highest prevalence across regions. 27% of them have not been diagnosed and are at a higher risk of developing harmful and costly complications.
  • In North America, diabetes will cause 297,000 deaths in 2014. 41% of those deaths will be in people under the age of 60.
  • Worldwide, every 7 seconds one person dies from diabetes or complications of diabetes.
  • Diabetes is the leading cause of blindness, kidney failure and amputation.
  • Worldwide, $310 billion will be spent on treating diabetes.

In November of 2008, less than two months shy of my 40th birthday, I was diagnosed with Type 1 diabetes. I have decided to re-share the account of my diagnosis today, as I have another related blog post planned for the 6th anniversary of my diagnosis.

BrokenFoot
Despite the fact I had been around the theatre practically since birth, it wasn’t until 1979 that I first acted before an audience that wasn’t assembled in my living room. It was in a children’s play called Once Upon A Clothesline and I portrayed the pivotal role of Dr. Beetle who aids the unfortunate clothespin Pinette, who has fallen from the clothesline.

We rehearsed at the YMCA in whichever room was available to accommodate our tween-aged thespian troupe. On one particular afternoon we rehearsed in the gym amidst the gymnastics equipment. Like most 10-year-old girls who had been swept up in the whirlwind of Nadia Comaneci’s 1976 Summer Olympics in Montreal, I took gymnastics. And having taken two years of gymnastics classes at that very same Y, I fancied myself a gymnast. One wintry afternoon, during my offstage time, I found myself wandering over to the balance beam and performing a round-off dismount that ended in a very un-Comanecilike landing.

The next morning my swollen and purple foot prompted a visit to the doctor’s office. Upon further examination, the doctor suspected that the foot might be broken and put my foot in a temporary splint that would stabilize it until we got to the hospital to have it x-rayed. As he was wrapping my foot, I remember crying. Not because my foot hurt, although it did, but because I was going to miss out on my big acting debut.

A broken growth plate, a foot cast and a set of crutches later, the accommodating creative team rallied and I was still able to make my acting debut. In fact, the doctor that made her entrance on crutches was cause for a bit of a chortle. So, despite the drama and the tears, the show still went on and I with it.

Throughout the years, many of my acting experiences have had a “broken foot” that I’ve had to work through alongside the performance: my aunt’s suicide, the death of my grandfather, my sister’s near fatal accident, my father’s cancer diagnosis. In many ways, having a show to focus on has helped me work through those difficult times. It is probably one of the many reasons that I have such a passion for theatre and why I repeatedly refer to it as my one true constant.

Nowadays, after having dallied in many of the theatre’s disciplines – acting, writing, directing, design, stage management, choreography and crew – I find myself opting for directing projects. Don’t get me wrong, I love acting but because I have to be more discretionary with how I select my theatre projects I usually opt for directing projects. In most cases I am more passionate about the shows that I have the opportunity to direct than the ones that I would be interested in auditioning for.

Of course, as fate often dictates, when it rains it pours. 2009 promises to be quite the theatrical year for me. I have received four offers to direct, two of which I have accepted. Furthermore, while official announcements won’t be made until January, there are a few other theatre-related endeavors that I will have a hand in. Naturally, amidst this flurry of theatrical activity, two dream roles that I would give my eye-teeth to audition for have surfaced. Given my love for theatre, all of this opportunity is akin to letting a kid loose in a candy store. And being the realist that I am, I have been waiting for a few months for the other shoe to drop.

And it has.

The shoe first dropped with the reminder that I need to be cognizant of the other responsibilities that I have in my life: my family, my marriage, my job. Regretfully, I never pursued my theatrical ambitions in earnest and, therefore, my love of the stage does not pay the bills. As such, there is no justification for my theatrical adventures outside of the happiness and personal fulfillment it brings me. Given the strain that it puts on the other aspects of my life and recognizing the selfishness of pursuing an unrealized dream is basically a dropping shoe that was both inevitable and justified.

However, unbeknownst to me at the time, that dropping shoe was falling off of a broken foot.

DiabetesCongrats
Last week I was diagnosed with Type 1 diabetes. During tech week for Little Women and the week abroad that followed I was feeling a bit under the weather. I knew something was up and scheduled a doctor’s appointment for the Monday following my return from the UK. At the appointment I listed off my symptoms and the nurse asked me if I had history of diabetes in my family. After a couple of quick tests in the office, it was evident that I did, in fact, have diabetes. My doctor sent me to the pharmacy and I was put on insulin straight away. The next day, I went to the endocrinologist who explained to me that I had such high sugar and ketone levels that I narrowly escaped ketoacidosis and hospitalization. Another blood test later, it was revealed that I did indeed have type 1 diabetes and that I would be on insulin injections for the rest of my life.

Now, like any self-respecting theatre aficionado, I have seen Steel Magnolias and, until now, that play/film had formed the basis for my knowledge of diabetes, specifically type 1 which Julia Roberts’ character Shelby has. When I tell people of my diagnosis, I can see in their faces whether or not they are replaying select scenes Steel Magnolias in their heads. And that’s okay. I have done it countless times, too.

There are times when I’m scared. There are times when I’m pissed off. There are times when I’m sad. There are times when I’m defiant. And those feelings will not go away, much like the disease responsible for generating them. I’m sure these emotions will grow more infrequent as I prepare for a lifetime of “managing” diabetes. It is just a matter of incorporating them, and it, into my now drastically altered life.

It is amazing what a person can learn in two weeks. Naturally, I am reading as much as I can about the disease and am doing my level best to get it under control. My life experiences have provided a pretty solid medical knowledge, so I’m learning the textbook side of things fairly easily and I’ve become a pro at injecting insulin into my now bruise-covered stomach. But in the past two weeks I’ve also learned a lot about myself. I’ve learned that I have a passion for many things: my family, my friends and my art. I’ve also learned how difficult it is to balance so many loves. While it isn’t a skill I’ve yet mastered, it is one I plan to hone. But as Emerson says, art is a jealous mistress. Believe me, I recognize the priorities I’ve got at the moment but I also know that my mistress will wait only so long before she gets restless.

So here I am, left to steady my course and face the road ahead. Yes, I have a broken foot and, while it may slow me down for a bit, it will not stop me. So, despite the drama and the tears, the show will go on and I will go on with it.

Mark my words.

 

November Becomes Stresspiration

AngerStresspiration? Yes – it is a word that I made up. So what? It really sums up my continuous and apparent need to add more stress to my life by categorizing it as an inspirational endeavor.

Between October and the end of the year, our family celebrates seven birthdays, eight if you include December 25th’s birthday boy. And that is one heck of a stressful birthday celebration. Then there is travel, holidays, parties, shows to see, concerts to attend and, of course, the subsequent financial ruin that basically leaves me in tears and an anxiety-induced cold sweat by the time my birthday rolls around on January 1st.

Naturally, the first thing I would do is add more to my plate. At least the three things I’ve added won’t cost me more than time and here they are:

NaNoWriMo
I tried National Novel Writing Month last year and failed miserably. Of course, I was directing a play at the time so I pretty much went to work and then to rehearsal, with no time to write. This year, I have a bit of a head start as I am going to be converting my play, A Gift of Undetermined Value, to a novel format. I’m leaving the house in about an hour for a party so I’m already in the hole 50,000 words.

National Diabetes Month
As many of you know, I was diagnosed with Type 1 diabetes right before my 40th birthday. A very big part of me wishes that I had been diagnosed when I was a child because it would be much more incorporated with my lifestyle than it is now. I promise you, if you live forty years without it, the changes are very evident and exceedingly frustrating. That said, I have made it a goal of mine to post about what it is like to live with diabetes, including a week where I do a play-by-play on social media during November to help people understand what it’s like to live with it.

Blog A Day
So, my blog has been pretty neglected. Some friends that didn’t want to commit to NaNoWriMo felt that writing a blog post a day would be less ominous in nature. So I signed up. This is the first post for Blog A Day.

Tomorrow there might be another one.